We're expecting our 3rd child in July. We had an ultrasound preformed at 28 weeks and discovered he has anencephaly, a fatal birth defect. Here's our story and experiences
Sunday, October 24, 2010
Today in church during the sermon, Jonathan was drawing like he usually does on the kids bulletin. After church he showed us his picture of Jesus and Baby Jack. We we just speechless. He appears to understand what happened very well and knows he's in good hands.
Anencephaly is the absence of a large part of the brain and the skull.
Anencephaly is one of the most common neural tube defects. Neural tube defects are birth defects that affect the tissue that grows into the spinal cord and brain.
Anencephaly occurs early in the development of an unborn baby. It results when the upper part of the neural tube fails to close. Why this happens is not known. Possible causes include environmental toxins and low intake of folic acid by the mother during pregnancy.
Anencephaly occurs in about 1 out of 10,000 births. The exact number is unknown, because many of these pregnancies result in miscarriage. Having one infant with this condition increases the risk of having another child with neural tube defects
We have recieved so many kind words, prayers, and stories from people that have reached out to us.