We're expecting our 3rd child in July. We had an ultrasound preformed at 28 weeks and discovered he has anencephaly, a fatal birth defect. Here's our story and experiences
Friday, May 27, 2011
A break in the clouds
On the was home from our first ultrasound in Omaha, "love has come" by Mark Schultz came on the radio, and the first verse kinda sums it up.
Well, I know this life is filled with sorrow And there are days when the pain just lasts and lasts But I know there will come a day When all our tears are washed away with a break in the clouds His glory coming down and in that moment
As we were anticipating this day for weeks, we had prepared ourself for the worst. There was a chance that this baby could have anencephaly. As we knew the risk was there, deep down, we didn't know if we could handle it, we just kept praying and praying for a healthy baby.
At 10:40AM Friday, May 27th, we got to see, (as far as the Dr. could tell) a healthy, and perfect little baby. Granted this ultrasound was done at 14 weeks, a little earlier than most, and another is scheduled for 20 wks. We saw a complete skull, and a good forming brain. So far everything appears good and normal.
As excited we are, something happens once you lose a child, that forever changes how you view things. Weather it's friends who have been hoping to grow thir family, or another diagnosis of anencephaly. Everytime we hear or read their story, a piece of our heart goes out to them. We wish we could make the sorrow go away, but we can't.
Anencephaly is the absence of a large part of the brain and the skull.
Anencephaly is one of the most common neural tube defects. Neural tube defects are birth defects that affect the tissue that grows into the spinal cord and brain.
Anencephaly occurs early in the development of an unborn baby. It results when the upper part of the neural tube fails to close. Why this happens is not known. Possible causes include environmental toxins and low intake of folic acid by the mother during pregnancy.
Anencephaly occurs in about 1 out of 10,000 births. The exact number is unknown, because many of these pregnancies result in miscarriage. Having one infant with this condition increases the risk of having another child with neural tube defects
We have recieved so many kind words, prayers, and stories from people that have reached out to us.