We're expecting our 3rd child in July. We had an ultrasound preformed at 28 weeks and discovered he has anencephaly, a fatal birth defect. Here's our story and experiences
Thursday, May 6, 2010
Time to think
Last night was a late night, or some call it an early morning. We feed turkeys for Sara Lee Foods, and our birds were scheduled to be delivered last night. My service person is always there to do the unloading and looks over the birds to make sure they arrive ok. I'm there to assist him. The first truck came at 9pm (they move them from the brooder to the finisher (me) at night so they stay calm). The trucks arrive every 30 minutes, and it takes about 12 truck of birds to fill the barns. So there is time to think and ponder in between loads. Last night I was thinking how having the ability to connect with freinds and strangers (through the internet) has helped us understand what anencephaly is and we have found websites and blogs with others that are in the same situation. We've chatted with people from Maine to California and everywhere in between. Even the shortest notes that someone leaves, the kind words of support, either by email or on a chat board, or just a phone call, can make a difference.
Anencephaly is the absence of a large part of the brain and the skull.
Anencephaly is one of the most common neural tube defects. Neural tube defects are birth defects that affect the tissue that grows into the spinal cord and brain.
Anencephaly occurs early in the development of an unborn baby. It results when the upper part of the neural tube fails to close. Why this happens is not known. Possible causes include environmental toxins and low intake of folic acid by the mother during pregnancy.
Anencephaly occurs in about 1 out of 10,000 births. The exact number is unknown, because many of these pregnancies result in miscarriage. Having one infant with this condition increases the risk of having another child with neural tube defects
We have recieved so many kind words, prayers, and stories from people that have reached out to us.