We're expecting our 3rd child in July. We had an ultrasound preformed at 28 weeks and discovered he has anencephaly, a fatal birth defect. Here's our story and experiences
Friday, May 14, 2010
Update from this morning
It appears that hopefully Jack was taking a long and much needed nap. I came back to the house mid morning to check on Sarah and she seemed allot better. She could feel him moving around again. Talk about an emotional roller coaster. Even though we know what the outcome is, (then there's always the chace of a miracle)when you feel him kick and move, he's alive.
Anencephaly is the absence of a large part of the brain and the skull.
Anencephaly is one of the most common neural tube defects. Neural tube defects are birth defects that affect the tissue that grows into the spinal cord and brain.
Anencephaly occurs early in the development of an unborn baby. It results when the upper part of the neural tube fails to close. Why this happens is not known. Possible causes include environmental toxins and low intake of folic acid by the mother during pregnancy.
Anencephaly occurs in about 1 out of 10,000 births. The exact number is unknown, because many of these pregnancies result in miscarriage. Having one infant with this condition increases the risk of having another child with neural tube defects
We have recieved so many kind words, prayers, and stories from people that have reached out to us.