We're expecting our 3rd child in July. We had an ultrasound preformed at 28 weeks and discovered he has anencephaly, a fatal birth defect. Here's our story and experiences
Friday, May 14, 2010
Update from this morning
It appears that hopefully Jack was taking a long and much needed nap. I came back to the house mid morning to check on Sarah and she seemed allot better. She could feel him moving around again. Talk about an emotional roller coaster. Even though we know what the outcome is, (then there's always the chace of a miracle)when you feel him kick and move, he's alive.
I am a Grandmother (Nana) of a child of Anencephaly. It is so unfair that our little babies have to endure this fatal defect. My heart goes to you....It has been 10 months since our little one was born-lived for a GLORIOUS 22 hours- and then passed away. She was beautiful. I commend you for carrying your precious little Jack to term. I would never belittle someone who chose differently, but from experience..to have held them, looked at them, felt them and was able to bond in our hearts...I will never forget her....never ever ever. She is real and she lives with the Lord now and she is the most precious angel one could ever imagine! God Speed to you and your family. Nana Lori
Our thoughts & prayers are with you & your entire family. I am deeply saddened to hear that you & your family will have to endure something so painful. Hugs to you & your entire family! Mark & Amy Forbes
Anencephaly is the absence of a large part of the brain and the skull.
Anencephaly is one of the most common neural tube defects. Neural tube defects are birth defects that affect the tissue that grows into the spinal cord and brain.
Anencephaly occurs early in the development of an unborn baby. It results when the upper part of the neural tube fails to close. Why this happens is not known. Possible causes include environmental toxins and low intake of folic acid by the mother during pregnancy.
Anencephaly occurs in about 1 out of 10,000 births. The exact number is unknown, because many of these pregnancies result in miscarriage. Having one infant with this condition increases the risk of having another child with neural tube defects
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We have recieved so many kind words, prayers, and stories from people that have reached out to us.
I'm so glad she felt him!
ReplyDeleteI am a Grandmother (Nana) of a child of Anencephaly. It is so unfair that our little babies have to endure this fatal defect. My heart goes to you....It has been 10 months since our little one was born-lived for a GLORIOUS 22 hours- and then passed away. She was beautiful. I commend you for carrying your precious little Jack to term. I would never belittle someone who chose differently, but from experience..to have held them, looked at them, felt them and was able to bond in our hearts...I will never forget her....never ever ever. She is real and she lives with the Lord now and she is the most precious angel one could ever imagine! God Speed to you and your family.
ReplyDeleteNana Lori
Our thoughts & prayers are with you & your entire family. I am deeply saddened to hear that you & your family will have to endure something so painful. Hugs to you & your entire family! Mark & Amy Forbes
ReplyDelete